|
3050 |
Ruaridh Pringle |
2018-05-04T12:47:18.067 |
I've had ME for 30 years, since I was 18. During a relapse over the past 2 years (following 14 relatively good years ... |
|
3050 |
Kay Mears |
2018-05-04T12:51:03.287 |
From a UK patient. |
|
3050 |
Sidney Lockwood |
2018-05-04T13:31:05.153 |
It is high time ME suffers where recognised as a disability and the Government should accept the need for recognition... |
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3050 |
Robert Mac |
2018-05-04T13:47:02.653 |
Have lived with M.E. for 30 years \r\nDespite the scientific medical breakthroughs over the years ........Many patie... |
|
3050 |
Sue Waddle |
2018-05-04T14:56:46.023 |
Twice as many people have ME as have MS. Why is there no government funding of biomedical research into this conditio... |
|
3050 |
cait ni Cadlaig |
2018-05-04T15:23:27.477 |
If such a center is set up It should include those of us with Fibromyalgia or in many cases ,as is mine .I have both ... |
|
3050 |
Lesley Doherty |
2018-05-04T16:59:46.307 |
This is woefully underfunded and under supported. |
|
3050 |
Maggie Taylor |
2018-05-04T19:47:13.037 |
Treatment for ME is very patchy with little understanding of the condition. This has to change. |
|
3050 |
Sofia Gurovich |
2018-05-04T20:43:39.013 |
I'v been sick with ME for 29 years , the disease is progressive , bed confinde , no treatment . wish there was more h... |
|
3050 |
Christian Bayne |
2018-05-04T21:19:43.19 |
I find it impossible to manage my illness let alone get better, when the current consensus is ' M.E.is not really a r... |
|
3050 |
Paula Jackson |
2018-05-04T23:01:08.057 |
I've had ME for 7 years. It has changed my life hugely. I cannot work. I can't take a walk down the street. I can't c... |
|
3014 |
Ian Meikle |
2018-05-05T06:27:20.437 |
Not before time!!! |
|
3050 |
Andrew Mcquade |
2018-05-05T11:43:42.16 |
More research needs to be done to help people live a normal life |
|
3050 |
Matthew Woodward |
2018-05-05T13:07:13.023 |
I've had M.E. for 25 years, since I was 13. M.E. is a seriously debilitating disease that isn't taken seriously by GP... |
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3014 |
Marie Harris |
2018-05-05T15:27:57.463 |
The Named Persons Scheme and GIRFEC clearly violates the Human Right to a Family Life, free from State interference, ... |
|
3050 |
Christine Laennec |
2018-05-05T16:06:28.343 |
A member of my family, now 20, has had ME since age 13 and is mostly bedbound at this point. We desperately need res... |
|
3050 |
Sheena Beaton |
2018-05-05T16:08:38.5 |
Please consider more research and appropriate treatments are vital |
|
3050 |
Edmund Garrod |
2018-05-05T17:56:33.12 |
ME a Serious illness that affects all life aspects requires vast support for all affected. |
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3050 |
Marian Cowie |
2018-05-05T21:16:27.233 |
All power to you |
|
3050 |
DOROTHY O'DRISCOLL |
2018-05-05T21:56:18.613 |
A member of my family has been ill since the age of twelve. She has spent thirty years in pain. Pain from her numer... |
|
3014 |
Steven McLaughlin |
2018-05-06T04:43:57.073 |
The suffering the State is imposing on we the people will no longer be tolirated with the HAMMER of the SCOTS |
|
3050 |
Emma Henderson |
2018-05-06T10:37:37.123 |
I was referred to the ME clinic in Edinburgh in June 2017. I have still not been given an appointment. The system of ... |
|
3050 |
joke de reus |
2018-05-06T16:51:45.587 |
help\r\n |
|
3050 |
Alison Abbott |
2018-05-06T19:46:25.063 |
We definitely need to have this situation remedied as soon as possible so that sufferers & their families are looked ... |
|
3050 |
Denise Hill |
2018-05-06T23:07:11.433 |
Enough is enough. We've tried it your way and it doesn't work. It's time to listen to us now. Please give us the resp... |
|
3050 |
anne macgillivray |
2018-05-06T23:39:09.147 |
ME finds people lost and forgotten. Strange things happening to you body ( after year of going to the dentist all of ... |
|
3050 |
Julie Evans |
2018-05-07T04:15:47.793 |
I have been living, what a strange word, with this horrible disease since 20002. It has taken my job, my education, ... |
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3014 |
Catherine spink-white |
2018-05-07T08:34:15.76 |
Given the subjective opinions of many of the people involved I find the named person totally and an absolute danger t... |
|
3050 |
Helen Smith |
2018-05-07T11:37:56.66 |
It seems we are going backwards instead of forwards as one would hope. I have had M.E. for 30 years. Initially it w... |
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3050 |
Kitty landers |
2018-05-07T15:11:05.533 |
Much research needed and a recognition of the sickness |
|
3050 |
S.almond |
2018-05-07T16:05:47.993 |
This is a very dibilitating illnesses people need more support. |
|
3050 |
Eilen Vollan |
2018-05-07T18:19:52.46 |
It's time to end the abuse of ME patients, and spend more money on biomedical research. |
|
3050 |
Gerry Farrell |
2018-05-07T18:33:08.78 |
Shona Robison, you are sitting on your hands. Where is the funding for research into M.E.? The Scottish Government's ... |
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3050 |
Cameron Vaské |
2018-05-07T20:41:24.22 |
This is a worthy cause, and one which I believe the Scottish government is well-equipped technically and morally to h... |
|
3050 |
Karen duncan |
2018-05-07T21:35:09.15 |
I just want to live my life, not watch others live as I disappear.\r\nI want to work, not fear I will loose my job to... |
|
3050 |
Lorraine Deacons |
2018-05-07T23:38:17.183 |
I've had ME for going on 12 years . It's becoming much harder to cope with . We need funding for research and bett... |
|
3014 |
Patricia Hewitt. |
2018-05-08T07:46:18.513 |
I totally agree and have seen evidence first hand of this happening , myself included . I was the main Petitioner of ... |
|
3014 |
George McCann |
2018-05-08T08:44:32.977 |
South Lanarkshire Council deliberately broke DPA and Councillors Code of Conduct and nobody cares, South Lanarkshire ... |
|
3050 |
Paula Heron |
2018-05-08T08:50:17.947 |
I have had M.E for 16 years and severe M.E since 2011 and we still have to fight for medical staff and the world to b... |
|
3050 |
Robert McCormick |
2018-05-08T13:03:35.937 |
Have survived 30 yrs with this illness \r\nFeel awful right now \r\nThe UK is going backwards when it comes to health... |
|
3050 |
Kirsty Guilfoyle |
2018-05-08T13:08:27.997 |
It took ten years and £1000 in private fees for me to me diagnosed, which for someone who has never been able to have... |
|
3050 |
Vivienne Agar Sowter |
2018-05-08T13:56:16.647 |
I have two members of my family with ME CFS and it has destroyed their lives, including their ability to access any m... |
|
3014 |
Marie Mccann |
2018-05-08T14:32:58.623 |
Full review to highlight failings is overdue |
|
3048 |
Denise hogg |
2018-05-08T17:04:16.353 |
Both my children had free instrument lessons. My father also taught brass instruments in various schools. Don't think... |
|
3048 |
Jacqueline Grimley |
2018-05-08T17:56:56.547 |
In West Lothian we are fighting for fairness in school music tuition. It will be disastrous for our children's educat... |
|
3050 |
Jill Johnson |
2018-05-08T18:19:16.427 |
My family member was abandoned by Occupational Therapy after not being well enough to do graded exercise. Abandoned b... |
|
3048 |
Emma Cairns |
2018-05-08T18:21:48.733 |
I benefited from free musical tuition as a child and the fees for my children have just doubled to 100% recovery what... |
|
3048 |
John Leitch |
2018-05-08T18:25:12.39 |
Charging for Instrumental instruction was tried before in South Ayrshire and was an unmitigated disaster. The scheme ... |
|
3048 |
Ellen Smith |
2018-05-08T18:45:03.993 |
The arts are just as important in the curriculum as any other subject group and in my experience (having taught music... |
|
3048 |
Ann Ness |
2018-05-08T18:45:37.4 |
Both myself and my son received free instrumental lessons and we both continue to play and perform. Music inspires t... |